Every child has the right to the best possible health—and that includes being heard. The Scottish Government’s updated guidance on children and young people’s participation in decision-making marks a significant step forward in ensuring that young voices are not only acknowledged but actively shape the services and policies that affect them. This guidance will influence professionals across health, education, social care, and justice, reinforcing the legal duty to involve children meaningfully in decisions that impact their lives. It’s a powerful reminder that participation is not optional—it’s a right.
Commenting on the release of the updated guidance, Rhianne Forrest, Officer with Children’s Health Scotland said:
We welcome this updated guidance as a vital step forward in strengthening children’s rights in Scotland. Through our Health Rights Service and our work with our Health Rights Defenders, we know that when we truly get it right for every child—by listening to their voices and resisting the urge to speak for them—we empower them to take control of their health. Everyone wants to feel seen, heard, and valued. Now more than ever, it’s essential that children are at the heart of these conversations, shaping the healthcare journeys that belong to them. When we listen—really listen—and make space for children and young people to lead, we don’t just improve services; we transform lives. This guidance helps ensure that their voices are not only heard, but respected and acted upon, placing children firmly at the centre of decisions that affect their health and wellbeing.
For nearly 50 years, Children’s Health Scotland has championed the right of every child to be safe, listened to, and supported to reach their full potential. Our Health Rights Defenders—a group of young advocates—have played a key role in shaping national policy, including contributing to the Royal College of Paediatrics and Child Health (RCPCH) Scotland’s National Call to Action. Their insights have helped spotlight urgent issues like access to community paediatrics, transitions for disabled children, and equity in care.
Our Health Rights Service provides direct support to children, young people, and families, helping them understand and exercise their health rights. From tailored resources like the Coping with Needles Guide to health-related play workshops and advocacy, we ensure children are prepared, informed, and empowered in healthcare settings. We also provide Health Rights Training to support professionals in becoming #HealthRightsAware—now a legal duty under the UNCRC.
As Scotland continues to embed the UNCRC into law and practice, this guidance is a timely and essential resource for professionals and organisations working with children. At Children’s Health Scotland, we remain committed to ensuring that every child’s voice is heard—and that their right to the best possible health is upheld.
👉 To view the updated guidance, click here
👉 To learn more about our Health Rights Service, click here
