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Children's Health Scotland

Promoting the healthcare rights and needs of children and young people

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Families

father and children

We are the only Scotland wide charity dedicated to promoting and championing the needs of all children and young people and their families at times of illness. We also supply information and resources, support and advice with the aim of helping families access the best possible healthcare. Click here to read a case study of how we can help.

Advice and Support

If you need information or advice on any aspect of caring for a sick child or young person, then contact our national office or our member of staff in your area.

Family Support

Our area staff can offer help to families caring for a sick child. They can:

  • Provide general support and advice in order to help a family know what to expect and how to prepare their child for a hospital visit or admission.
  • Help families understand and learn about health rights.
  • Provide support to liaise with healthcare providers or the hospital.
  • Obtain advice from expert advisers on behalf of a family?
  • Provide one-to-one support through our hospital play box this can also be in a group setting within the child’s nursery or school and may also be as a support for the sibling(s) of a sick child.
  • Signpost to other sources of help such as information on welfare rights and benefits, family support groups for specific conditions.
Caring for a Child with Long Term Conditions

Around two million people in Scotland live with one or more long term condition. A long-term health condition is one which lasts generally longer than a year. Usually there is no cure but there are things that can be done to maintain and improve quality of life. We work for all children and young people when they are sick and we recognise the range and complexity of needs of young people with long term conditions. We have a Self-Management project for young people with long term conditions which is based in Edinburgh. If you are caring for a child or young person with long term conditions and you live in or near Edinburgh this may be of interest.

For more information read the Lothian Self-Management project page.

Caring for a Child in Foster or Kinship Care

We provide workshops for kinship and foster carers which covers a range of healthcare topics relevant to children and young people in care. We also provide information resources for foster and kinship carers.

For more information read the Looked After Children and Young People’s project page.

Information and Resources

We have a range of resources for families. Please click here for our Publications and Resources for further information.

Parent and Carer Pack

Going into hospital or preparing for any other kind of healthcare treatment or intervention can be a daunting time for families. Information about the treatment and what to expect can help families cope better and prepare their child for what to expect. Our pack includes a selection of our leaflets, including, What to expect when a child goes to hospital and the EACH Charter explaining their healthcare rights. It also includes booklets on Consent and Confidentiality for under 16s and Have Your Say! Call 0131 5536553 if you would like a pack.

Children and Young People’s Healthcare Rights

The European Association for Children in Hospital (EACH) charter gives information about the standard of care families should expect to be provided for their child in hospital and when accessing healthcare services. This booklet sets out the ten articles of the charter and explains what they mean.

There is an EACH poster illustrating the ten standards click here to view it.

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Your literature was great. It helped me explain to Angus what he should expect. It also encouraged him to ask questions. You also pointed me in the right direction so that I could make good use of the excellent play specialist who gave us a lot of support. Angus felt empowered because he was allowed to make choices.

Mother of 8 year old boy who was scared of going to hospital for surgery

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Know your rights

EACH charter cover
Did you know that all Children and Young People are protected by the EACH ( European Association for Children in Hospital) Charter?

This sets out ten articles that describe how you can be expected to be treated in hospital, and what your rights are.

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Children’s Health Scotland. Scottish Charity No. SC006016. Registered Company No. 100114

Registered Address : 22 Laurie Street, Edinburgh EH6 7AB

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The Scottish Government Children, Young People and Families Early Intervention Fund